PCOS Support

[tashgoode@hotmail.com]

ive just been diagnosed with pcos after trying to concieve for 3 years. had a miscarrage 1yr ago. Im confused about what this means for me. All the information i have read about the disease had lead me to belive that weight loss is a great way to help this syndrome. What happens if you have no weight to loose?? I weigh 48kg I have no other symptoms of pcos only the cysts which were picked up on ultrasound ... can anyone eles relate to this?

[belle75]

Hi girls,
Just joined this site. There's lots of great information - Thank you fellow "cysters" . Reading about your experiences really helps. Have been very confused, lonely and scared since being diagnosed with PCOS.

Found out I had PCOS 3 months ago, though I had suspicions for the past 15yrs. Have never had regular periods - cycle length ranges from 3-8 months at a time, getting adult acne, losing hair on my head and growing it elsewhere!! Stopped the pill in Jan 2007 and since have had periods every 3-4 months. Weigh 55kg (height 151cm). On Metformin 3 times a day (850mg, 500mg, 850mg) since Apr 2008. Lost 3kg since then. Have not had AF in 2 months. Age 33 and am desperate for a baby!

Those of you with endometriosis - how were you diagnosed? what were your symptoms? I have had severe pain in my right pelvic region for months 2yrs ago. still get some pain, although not as bad. pain seems to radiate down my leg. Also severe right pelvic pain (2yrs ago) when passing bowel motion / urinating. Has anyone experienced this?? Had a vaginal u/sound done but all was normal. I don't think my GP understood what was going on or what to look for. Got a referral for an Ob/Gyne this yr and was diagnosed with PCOS.

Trying to stick to a low GI diet, megadosing with vitamins and increasing my exercise. Nothing seems to help. It's so confusing because I don't know whats happening with my body. Don't know when I ovulate (or whether I do!). Using Maybe Baby but am sick of seeing the "pebbles".

Sorry for rambling on, but I feel like no one else understands or cares. Thanks for listening guys.

& to all. :goodluck2:

[nickthechick101]

Hi Belle & Welcome

I am also fairly new to this site and have found it a wonderful place to chat and share what you are going through. It is so nice to know that you are not alone. There are plently of us out there struggling with fertility issues. The support and care from the wonderful women on this site has really helped me to remain positive and hopeful.
Are you seeing a fertility specialist? I see a wonderful reproductive endocrinologist who has helped me enormously. I can highly recommend them.
Anyway welcome and feel free to ramble anytime you like.

[belle75]

Hi Belle & Welcome

I am also fairly new to this site and have found it a wonderful place to chat and share what you are going through. It is so nice to know that you are not alone. There are plently of us out there struggling with fertility issues. The support and care from the wonderful women on this site has really helped me to remain positive and hopeful.
Are you seeing a fertility specialist? I see a wonderful reproductive endocrinologist who has helped me enormously. I can highly recommend them.
Anyway welcome and feel free to ramble anytime you like.

Hi nickthechick101,

Sorry I did not see your post before. Thanks for the welcome. Yes, this is a wonderful site to vent your frustrations!! I find everyone is so helpful and supportive. Not many people out there are aware of PCOS and hence I find there is very little support in the community.

I am not seeing a FS. Just a gyno who put me on metformin 4 months ago. It seems to be doing something. My last cycle was 48 days long compared to 160 days! so I'm excited about that. Were you recommended to a FS/endo? What is the difference between a gyno and a FS? I would love a referral or help in this area. Could you please suggest someone? I live in Melbourne.

Lots of love & babydust.

[nickthechick101]

Hi Belle

Personally I see a reproductive endocrinologist (RE) and have found her to be amazing.
After 10 years & seeing numeros gyno's & FS I had no luck conceiving.
After seeing my RE I was pregnant within 6 months! AMAZING!! I know!
The RE I see has practive in Box Hill and also East Melbourne.
Let me know if you're interested and I will PM you her details.
I have found her wonderful and so helpful, well I now have a 3 year old to thank her for.
You can just get your GP to write you a referral.
Be warned that it can be hard to get an appointment with her. You are lucky if you can get in under 8 weeks.

[belle75]

Hi Nic,

Thanks for that info. Yes, I would really love to have her (your RE)details if you don't mind please? It seems like such a long journey sometimes!

All the best with your TTC journey. Hope it's very short.

[nickthechick101]

Hi Belle sorry I haven't checked in this forum for a bit & just saw your message.
I have been trying to figure out how I PM you but it seems you have to be a paid up member to use that function??
If you want to email me "nickthechick33@hotmail.com" I will send you back the details of my RE.
Speak to you soon.

[mira]

hi all..
i 2 am a new member.. was onli diagnosed a few mnths ago 2..
but am glad to have found this forum.. thanx for all the useful info!
but juz a quick q.. everyone seems to be on "metaformin" but im on "diabex XR" my friend is on "formet" now, im wonderin if im on the wrong meds..
would love to get pregnant in the nxt yr or so... am a bit worried that i shouldnt b takin the diabex...
if anyone can clear this up for me would b greatly appreicated!

[nickthechick101]

Hi Mira

In answer to your question Diabex & Formet are exactly the same as I understand it.
Diabex is the registered or trade name of the drug and Formet is a generic brand.
I beleive that they both have exactly the same ingredients so should do the same thing.
The main benefit of Formet is that it is a little cheaper than the brand name drug.
I fell pregnant using metformin a few years back so I wish you well
Look forward to chatting further and I have found that there are lots of lovely ladies on this site who can answer almost any question you may have.

[belle75]

Hi Mira82,

Yes, Diabex and Formet are brand names of Metformin which is the actual ingredient in both medications. You are taking Diabex XR which is basically the extendend release form of metformin so it dissolves slowly in your bowels to be released slowly over 24 hours. That way you have less side effects of the metformin. You may get a white pasty discharge in your stools. Don't worry, it's just the casing of the XR tablet.

Good luck with TTC.

xox

[Pooley]

tashgoode

I too am confused about my diagnosis. I did have PCOS then I didn't. The only thing I had was the cysts on the ovaries, then they did a blood test to confirm. I have not weight to lose either. It has taken me 3 1/2 mths for my AF to arrive and now after temping this cycle its looking pretty grim, I don't think I ovulated. A different doctor says that I don't have it so am waitingfor my next AF and if that doesn't come am going to see a specialist.

I think you need a second opinion especially since you were diagnosed so long ago.

Good luck