Sorry to hear your results (I hope you doing mind me saying that am a little excited for you if this makes sense) but this means you have identified something which is an issue and can be treatable with a different protocol. I have heard of quite a few success stories after this was identified. Will be crossing my fingers and praying for you. Hugs xx
Had appointment with specialist yesterday, and have been diagnosed with Antiphospholipid syndrome - which basically means my body attacks the embies before they implant and the interaction with the immune system occurs to allow the pregnancy to progress. Apparenlty the syndrome is also related to reoccurent M/C. So I'm on asprin as of now and then 2 x per day heparin injections from transfer. If we get a BFP than I'm on the injections for the first 16 weeks and then it is reviewed. There is not clear answer on why this treatment does (or in some cases does not work)...but I just hope that this works for us
Selin - wishing you all the best with your pregnancy.
FG
Fingers crossed for you that this is the starting point for your BFP, and that the aspirin and heparin do the trick. I have a friend of a friend I believe was in the same situation and IVF was successful. Will be praying for you and looking out for how your next cycle goes. Hugs xx
Hi Selin,
Congratulations on your pregnancy, glad your bleeding has stopped, and your hcg numbers look great.
I'm really good at starting threads and forgetting to come back and reply to them....and to be honest I've been really struggling lately with our situation.
I got my test results back in December. A couple things which my doc said aren't major, but added together could potentially have caused problems. I tested positive to the MTHFR gene mutation (which I think makes you more prone to miscarriage?). I've been told to take mega folate and a vitamin b maxi for the rest of my life.
Tested positive for thyroid antibodies, so I need to get checked yearly for thyroid problems.
I'm a bit sketchy on the next bit - there was an 18% result on something which I can't remember, but it was an immunity thing. I'm sure she said it could be immunity, or I could have just had an infection in my uterus at the time. But anyway, as a result when I do the next cycle, I need to take antibiotics, progesterone and aspirin. And if I get pregnant then they'd swap the aspirin for injections for the first trimester.
We haven't attempted another cycle yet. I want to but my husband wants a break. Says he just wants a break from the disappointment. I'm keen to do one asap to see if this new protocol makes any difference, but at the same time I'm not sure I'm ready emotionally for a disappointment either.
Hi incomplete,
While your test results are going to be overwhelming to start with, I guess the positive is that they give you a course of action that will lead you that little bit closer to your baby. Take strenght from that fact that you have taken more control over your fertility by asking for, and having the tests.
For me one of the big issues was remembering that find out about our problems was not going to mean we were going to get pg on the next cycle - it just put us back on an even footing with everyone else in the population which can mean that it will still take time, and there will still be disapointment...there is no great way of getting around that other than each attempt will be one step closer. The councillor that I was talking to at our IVF clinic was good at helping me deal with the struggle - it did not make it less disapointing, but it gave me, and DH ways to cope.
I agree with BD - get a copy of your results - they are good to have for future reference.
I just wanted to post that yesterday my new FS gave me the results from an extra BT she requested. My last FS had requested a whole range of tests, see my earlier post in this thread, but had missed MTHFR for some reason, not sure if this was not requested just because of an error.
Anyway, lucky for me my new FS picked up that it was missing and my results showed positive for MTHFR. In the weirdest way I am over the moon as now I have something that could be contributing to my unexplained infertility.
From what I understand people with MTHFR factor don't produce folic acid, vitamin B6 and vitamin B12. Women with MTHFR factor can have early miscarriages and a lack of B6 and B12 directly affects rapidly reproducing cells... which is exactly what an embryo is. In fact, a lack of B6 and B12 causes rapidly reproducing cells to STOP reproducing. This is also linked to an increase in homocyctein levels and falls under the thrombophillia blood clotting disorder.
Some I am now on:
Low dose aspirin daily (100mg)
5mg folate daily
Mega dose of B6 and B12
Clexane injections daily from ET
I am yet to know if this will make the difference to me getting a BFP, will definitely post my results, but just wanted to stress how worth it it is to get all your tests done and make sure ALL of them are done. I don't want to think about what it would have meant if I didn't get this one result, (everything else tested normal), possibly endless more transfers.
Good luck to you all.
UPDATE: I got my first ever BFP on my second cycle following commencing treatment as above. My scan today at 5 weeks showed TWINS! I attribute this to the Prednisone, Clexane and getting all my levels right.
Last edited by Baby Dreamtime; June 25th, 2009 at 11:57 AM.
Baby deams in a strange way i am glad that you have found something so you can move forward with a new treatment option - sending you all the very best!
BDT, just search 'implantation issue' and came up this thread...after total of 5 failed transfer (3 fresh and 2 FET) and 1 missed m/c, I also start to re-visiting this potential issue. I don't think I have done all these tests, I raised this issue before to my old FS but then I got a BFP so put it at the back burner, the m/c is due to chromosomal abnormality. Does this exclude me from having implantation issue? Because since then, I've never got a hint of HCG either...
I will see how this cycle go and then have a chat with FS to request the tests...
Also want to ask, how much blood they will take in order to run those test, the list seems pretty long, do they do it in one hit or have to go back a few times? I am a big sook on b/t....
When I had the tests they took about 12 viles of blood, they should offer, so if they dont, ask for the thin needle with a tiny tube attached, and they run the bloods through that little tube, and keep clicking on new test tubes...
It doesnt hurt at all sweets
Has anyone heard from Possums, she was getting test results on Friday, of various tests, and they had found something and where giving her the results Friday.......?? Hope your okay Miss Possums x
Hi CP,
As WLAB said, I too had about 12 vials in one hit, it did take a while and was starting to hurt, but I put up with it. I definitely think it is worth getting tested again, I think almost all of those that I had done were covered by Medicare excluding 2 or 3, it was a cost of about $480 up front, but got it all back except for about $60.
Wishing you all the luck with this cycle and hope you don't need to go down this track. Big hugs xx
CP : I wanted to add, my FS said I did not have an implantation issue, mine was an egg issue. I said to her " I dont want to go through various cycle's to get pregnant, then to find out I do, in fact, have implantation issues. I went in armed with every test I had ever heard of, and she was more than happy to test.
If you would like the item numbers let me know sweets. I have kept everything..
Thanks girls, that is so very helpful. Now it becomes my top priority...I have FS appt on 23 April, just not holding my breath on this 5-cell Day 3 TF, I hope it will prove me wrong...
Ok, now, about the item numbers, do I have to tell him what I want to test or if I mention 'implantation issue', FS will automatic know the list...I don't want have 12 viral of blood taken and found out he actually left out a fatal one...(I am just so precious about my blood don't know why?)
Is it insulting if I take a long list from here and give it to him?
Really gald that you're looking into this - I would defintiely take the whole list with you, while your FS probably knows what to do it never hurts to be sure.
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