thread: HPLS - Left heart syndrome

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  1. #1
    Registered User

    Nov 2004
    Chasing Daylight...
    2,034

    Nicolabee my heart goes out to you I was in the same situation about 6 years ago when my son was diagnosed with Left Heart Syndrome inutero. We were told to terminate, too, but we didn't. He did have two surgeries when he was born (for other congenital heart defects) and today is a healthy and happy boy.

    I know how upsetting and awful it is to hear that diagnosis hope the next scan brings good news for you.

  2. #2
    Registered User

    Oct 2008
    312

    Nicolabee - Yes we have this too - actually our son has Hypoplastic Right Heart plus five other heart defects.

    We found out at 20 weeks and were offered termination up to 24 weeks. He has had several heart operations - in Royal Childrens Melb. We are from Adelaide.

    Our son is now 4.5 years old and still has issues with his heart - there is no "cure". If you want to chat here you can ask anything (I mean anything) and I will be honest with you. Or you are welcome to PM me if you would prefer.

    My heart goes out to you. Is this your first baby? Our son was our first - I am now expecting our second and have just passed the 20 week u/s with a clean bill of health for this ones heart!! Yay!!

    Thinking of you and your DH.

    Rachel