Thank you Berry1 - I totally understand your comment "what if they got it wrong" - that is extremely frightening to me also (they assure me in our case this is not the case) - however I have read how things have been different at birth to that diagnosed during the early ultrasounds. Take comfort from the results, it sounds like they reaffirmed your decision.

I am totally torn at the moment - we have a tentative booking for a termination commencing Friday (the tablets) and induce labour on the Monday - we are under to obligation to proceed, but risk having to wait a week to 10 days after making a decision otherwise. (When I make up my mind, I need to do it "now")

We have gone through all the reasons why a termination makes sense for us - our two children at home while away with operations; what they would miss out on while caring for a child with additional needs (possibly special needs), our distance from Melbourne and specialty services (4 hours), our age, the risk to our unborn child at every turn - complications, infections - from the time it takes its first breath and that this is a palliative option - they will never be "fixed". I question whether I have the strength to watch my child go through so much - I look at my 6 year old and 3 year old and know how I would feel if something was to happen to them or if I were to lose them now.

BUT, then I look at our preliminary diagnosis - because the issue is now with the right ventricle, the risks associated with the first operation are 5% versus 25% with the left ventricle (installation of a stint - no heart bypass or reconstruction of aorta) - and that is if the operation is required. We then join HLHS babies with all the same risks and same operations and probable need for heart transplant. We have been told that there are usually no other associated problems with this abnormality, and have been cleared for genetic issues. Our baby is growing at the normal rate for 19 weeks gestation. Am I being selfish not giving our child a chance at life? Is it my right to take that away?

Had we gone into Friday, determined that we would do anything for this child, we would have been excited with the revised diagnosis.

I think I have a conflict of head and heart - but I can't yet make a decision with any real confidence (it changes daily).

DH is very rational and works through things logically - he is struggling with the choice, but sees termination as our best long term option - while I say that, dealing with a termination is another thing all together.

I am starting to question whether or not I will ever reach a point where I am at peace with my decision.

Thank you Rachel - I am hoping that speaking with the Psch will help us reach some conclusion with confidence.

Thank you everyone for your support.