I thought I would return and update, given our appointment with the cardiologist yesterday - while we do not have HPLHS or DORV the prognosis is apparently much the same - it is either double inlet left ventricle or Hypolplastic tricuspoid valve and Hypoplastic right ventricle.

In all - this is a 1 in 20,000 event, while HPLHS is 1 in 5000. We initially thought that perhaps this is a better result - but the cardiologist tells us that this is not the case there is no differentiation between the two (HPLHS and this). Thought the risks with the first operation seem significantly reduced.

We spent a pretty solid day yesterday with Dr's obstetricians, Social Workers and the like finding out about our options in a fair bit of detail.

Basically we have 4 weeks maximum to decide if we are to proceed with the pregnancy or terminate. There is no easy answer.

My mind is going around in circles - next step is a Psycologist (I think that is it) on Tuesday who will help us work through the pros and cons of each option.

Nicole