Hi Emjee. Welcome to BB, it's a great place for support or just to get your thoughts out!
I'm so sorry to hear what you've been through. Lani has offered me great information and a link to a website which I can send you. There is not much information out there.
Wishing you all the best with your chemo. And I'll send you the link, it's been helpful to me, hope it is to you also!