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Thread: Premmie Mums #2

  1. #109

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    Hey racs, Anneliese is doing great at home, im off to get her weighed tomorrow hopefully... she's now 5 1/2 weeks. How time flies... Hows your lil prince> Sounds like he escaped just in time. Xander has bronchiolitis and got out just in time. Which hospital was ronan in?


  2. #110

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    Happy 3 month Nixon and Happy 4 month Ronan!

    Yeah, I'm still around. Patrick is still in hospital and still in the headbox but today I was allowed to hold him and feed him, so that felt good. The Paed came in this morning and told the nurses to turn his oxygen down to 25% so to me that sounds like great news. He was really unsettled all day until about 6.30 pm and then he fell asleep for two hours, woke up had another feed and went back to sleep. They have had to put an I.V. into his little foot because his hands couldn't take the cannula.

    Rac- As Nic said try to have a sleep when he does, I know its hard but sometimes you just have to do it.

    Everyone else, thankyou for all your well wishes.

  3. #111

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    Jess - I hope little Patrick is on the mend ... I worked in children's ward for 12 years and the little babes with brochiolitis always tore at my heart - seeing them struggling to breathe and so uncomfortable and their poor mums wanting to comfort /feed them but couldn't always when really unwell in the headbox etc.

    hi Ladies - I have been reading the thread ... my boys were born at 35wks 4days .Thank fully not too prem.They only spent 3-4 days in NICU and have now been almost 2 weeks in SCN -thoguh very well and no problems with them.The only problem is midwives who keep changing feeding routines

    I popped into ask about the Breastfeeding issue ... Samuel (my big boy @2.9 kg born) is taking some breastfeeds now but only in last 2 days really and still having bottle feeds overnight and tube feeds.My little Joel (2.1kg born) refuses the breast but drains a bottle under 10mins sometimes.

    How did you go with establishing feeding especially BFing ?

    Did anyone find a lactation consultant helpful ?

    I have the double issue of wanting to tandem feed as soon as posible if I ever can - hard enough latching Samuel on by myself.

    I do feel a little frustrated that the midwives though busy sometimes haven't really assisted me much with establishing BF... today I had two crying babies - was bottle feeding Joel and rocking Samuel the basinette at same time with my feet or patting Samuel ... at home I will have to get used to it I know.

    I heard about the new vaccine ? RSV ... I am going to ask the Paed about it -not on PBS yet - does anyone know what age it can be given?

  4. #112

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    hmm
    trish I had similar probs. Wish I had got more help from at lactation specialists- esp one with twin experience so that I didn't doubt myself so much. That is the reason that I ended up expressing most feeds, for fear that they wern't getting enough and doubting my supply. Speak to your local AMBA club rep to see if they know a good lactation person to work with you, or one of the midwives at the hospital. Make sure they have tadem experience. Have you got a good tadem feeding pillow like the taddy? The fact that they are different weights makes is so hard at the start to tadem as the pillow doesn't balance properly as the weight is not even. Definately an art to it.
    It is possible, and you can do it!!!! Keep at it!!!

    Good luck!!!!!!!!!
    p.s. have you tried a nipple shield to see if that makes in easier for bubba to attach?

  5. #113

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    Hi Trish,

    firstly congratulations on the birth of Samuel & Joel!
    I would be speaking up to the MW there they really should try and help you feed them at the same time. A lactation consultant wouldnt do any harm either so ask them if they can arrange one for you.
    i know it would be a lot different with twins but as odette suggested maybe trying a nipple sheild? When Nixon was born he didnt know how to suck, and when he started it was at a very slow pace, i found the nipple sheild helped him (shape wise) to stay on and continue sucking. But if Joel takes to the bottle ok maybe there is another reason?

    i really think they should be helping you tandum feed so when you go home you can keep at it, because otherwise you'd end up feeding one, then the other and never get a break from feeding. do they ring you or anything when the feed times have been changed so you know when to or not to come in?

  6. #114

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    Hi Trish,
    Firstly congrats on the birth of ur little treasures - they look adorable and secondly, u sound like u r doing a champion job with ur twins!!!

    My dd was born at 34wks and at first she'd get really tired feeding on the breast so i'd have to express and give her the bottle, which she coped with much better. I didn't want her to get too used to a bottle, cause the MW's said sometimes a bub finds it easier with a bottle teat than the nipple, and they saw i was concerned that she wouldn't want to go back to the breast - so they suggested a Chu chu brand teat (from chemists).

    This teat was great cause it works like a nipple does, cause bub has to draw the milk out of it the same way they would out of a nipple, - it doesn't drip out with ease like some other teats. This worked for us and once she got a bit stronger she went onto alternate bottle/breast feeds and finally just onto the breast. Ella is still b/f today!!!

    Don't know if that's going to be of any help at all - but in the long run do what makes u and bubs the happiest! Ur doing great

  7. #115

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    thanks ladies
    Joel actually took a small b/f today for 10-15mins and I thought he sucked well but then he took a top of EBM 50mls - so either he is very hungry or I am doing (feeling) it wrong.

    The Paed sore them and said if they feed well -home by end of the week.Both have tubes out now.

    I have an appointment Friday for about 1hr with lactation consultant at Community health clinic and she said she will try to book me for a home visit next week. So fingers crossed.

    Now just convincing them we go home tomorrow (when we get our new car ) - and without having to room in. Did anyone else room in ?

    I rang them this morning and came in early - they were busy transferring a sick 34wker via NETS - so the feeds overnight were late.

    how is Patrick today ?

  8. #116

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    Patrick is starting to turn that corner and get better. I was able to feed him WITHOUT the nasal prongs today and his Sats stayed at 100% so that is a great confidence booster.
    The doctors said on Sunday, they are pointing towards the middle of the week, so that is tomorrow! So, fingers crossed!!!

  9. #117

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    Hey trish, in regards the breat feeding, i used to call in the morn, and ask which feed would be the best to come in and get help with. Anneliese's nurse always had 3 bubs to care for, and the feed times were (example) 12, 12.30 and anneliese at 1.30. I would go in for the 1.30 feed, as i know she wasnt going to be busy. And i would always ask "Can i do a b/f at 1.30? generally they were happy to help. Or i would just go in, get her up and bf, then look really awkward (sp?) they'd end up coming over to help anyway!! HTH!

    ANNELIESE IS 2.81kg!! the nurse wasnt sure how many pounds exactly but definately over 6... That means she's put on 400g in a week! The nurse couldnt believe it!! anyone know hows many lbs and oz??

    Hope ronans and patricks are going ok guys...

  10. #118

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    Simone i think its approx 6p 1oz or 6p 2oz.
    I think its roughly 2.2pounds per kg.
    wow what an amazing weight gain thats great!!

  11. #119

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    Simone -that's wonderful news about Anneliese's weight gain!!!!

    Jess - i'm soooooooo happy for u that ur little Patrick is making great progress - i will continue to keep u guys in my thoughts

    Trish - glad u've got an appoint with the lactation consult...hope that provides u with some more direction/answers with the b/f. It was great that Joel had 10-15mins feed today - u should feel positive about that, even if he needed that extra comp (top up) it's a great start!!!!! And yes - my DH and I roomed in.

    i'm really thrilled to read that these new prem munchkins are making improvements - as slow as it must seem for u mums - u'll be amazed how quickly it'll all be behind u. Next minute u'll blink and realise ur baby is sbout to turn 1 (as mine is next month!!!!!!!). Take care girls - my thoughts are with u all

  12. #120

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    I didn't want to post last night as I was so disappointed! For the past 4 days we have ben told that Pat would be coming home either Wednesday or Thursday. Well we got up there yesterday to find his monitor had been taken off, so we thought he must be coming home...no dice!The doctor came in after me waiting 4 hrs to talk to her!She said he wasn't coming home because they wanted to start demand feeding him again...WTF! Can't I do that?

  13. #121
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    Hi girls,
    Bel, Bec and Racs, thanks for asking about the paed visit. Sorry it has taken me a bit to get back to you. I have been feeling really low lately and then felt worse knowing that Ivy is not a very well baby at all and that her reflux is very serious. I was blasted by the paed for not insisting that Ivy be put in hospital after the last bleed (stupid, stupid me, I should have just jumped up and down in the first place). Her reflux has gotten to such a state that it has caused her oesophagus to break down, causing small 'breaks' in the tissue, which is causing the bleeding. She has been put on Losec and Zantac to get it under control and that is not going well at the moment. The other thing is that her pneumonia was almost definately caused by aspiration of vomit. This is not very comforting, as it can be a cause for apnoeas and increases the risk of SIDS, which I already have a terrible fear of. She suggested that perhaps this was the reason for her constant waking in the night, that she is having apnoeic episodes and that when her body kicks in, she is startled. It's all very stressful.
    Her ears are looking good, her chest is clearing. Her weight gain is ok, despite everything. She said that she seemed a little 'floppy' for her adjusted age. I felt so totally terrible when I left. Noah is going ahead in leaps and bounds though, so that is one good thing.

    We had one day off and then we had to go for the first developmental assessment. Again, Noah is going quite well, to his adjusted age, reaching all of his milestones etc.
    Ivy, they reckon is about another two months behind. She is floppier, doesn't vocalise as much and holds her body in a way that is not condusive to rolling/sitting etc.
    They enrolled us in a baby group, which is good and they have given us a corner chair to sit her in, to encourage her to bring her shoulders and arms more around to the front, so that she can grasp toys. I don't know about these assessments. I am happy that we can do things though to improve her development, if it is indeed lacking.

    I have spent the last few days blaming myself and not sleeping and stressing out. Last night and this morning I talked to Dave about everything and feel a bit better.
    The paed said she is happy to take the babies on but it is such a long way to travel and the girls only need to see her once or twice a year now. The afternoon we got home, JHH NICU called to see how they were going. When I told them everything, they were cross too and felt that they both needed closer follow up. Hadn't I just been saying that for the last fortnight? Anyhow, they gave me a few names and now the Clinical nurse Specialist wants to have a meeting with us to outline all the follow up we SHOULD be having, especially with young Ivy.
    I have to laugh. Before when things were really serious for me I couldn't get any help and now I have people offering it to me on a silver platter!!!
    It doesn't matter. I will choose a paed up here, I think and just go from there.

    Thanks for listening

  14. #122

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    Tiff and Jess my heart and prayers go out to u, ur families and mostly to ur little treasures - Ivy, Noah and Pat. I so hope things improve soon for u all and that ur bubs are soon home and healthy :hugs:

  15. #123

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    Tiff,
    Don't stress too much about those 'developmental' milestones. I had the same thing that one twin was always behind. he was my sickkie as well. Their poor bodies just can't grow, get better as well as reach milestones all at the same time. I found that with time my sickkie caught up once his health issues were more under control. I thought that we were going good, and after every MCHC nurse visit, or doctors visit, they would find some other medical thing that we had to worry about, and put us back to square one.
    In hindsight (such a wonderful thing) he was doing great, and so were we. It just that those damm charts etc that they compare all babies too were getting in the way. Those milestones that they talk of are for full term, singlton, well, children. Not prem, twin, and sick kiddos. You are doing a fantastic job with your twinnies and don't you ever doubt yourself !!!! Who cares if they cant grasp a toy when other babies are suppose to - she will get there when she is good and ready!
    My twinnies are now 3 1/2 and I was still paranoid that he wasn't meeting milestones as the docs were doubting him, even though I knew that he wasn't. So I got him tested by a psych at the RCH. Guess what!!! He is exactly reaching the milestones for his age. So screw you docs who doubted that he was, and screw you docs that doubted me and my maternal instict.

    As long as she is happy and secure- the rest will come with time

  16. #124

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    I have a friend who has 18 month old twins(boy and a girl), and her daughter was the smaller of the two, always sick, and "behind" in her developement milestones. They were born at 35w. It seems to be the way with twin, evetually they catch up, and Ivy will get better fingers crossed they get her reflux under control. im that everything starts looking up for you... dont doubt yourself, ever. You're a good mum
    And jess, Patrick will be home in no time at all, got some prayers for him too... i know its frustrating, but its better that they're 100% then to take them home and they end up going back... thinking of you both at this stressful time. Just remember to take some time for yourselves, otherwise the stress will get to you.

  17. #125

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    Hi all,
    We got back from Adelaide today. We had a great time...although Kyla was very unsettled in a different house with strange faces all around!
    It's taken me ages to catch up on everyone!
    Tiff- So sorry to hear of all the troubles that you have had to deal with of late. Poor little Ivy and Noah. I'm glad to hear that Noah is feeling better and hope that Ivy's reflux sorts out with the medication. What a stressful time that you are having.
    Nic- How are you?? How did the mother's group go? I hope you both had fun and that you have a good group of people. So happy to hear that Nixon is growing so well!
    Rac- Hope you are well - Ronan's last weight gain was great!
    Jess- So sorry to hear of all that you are going through atm. I hope that Patrick is home with you very very soon.
    Bec- Hi there - great to hear from you!!And wow Joshua sounds like he's going great guns!!
    Rae and Trish - Great to have you join us!! Trish - hope your little ones are home soon.

    Sorry for the short personals but it has taken so long to catch up - and I need to get an early night!
    Kyla is going so well atm. She has started eating her solids now and is opening her mouth for them...YAY - what a break through! She is also rolling lots now.

    Hugs to you all

  18. #126

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    Hi All,

    just got back this arvo from Mt Buller (snow) The snow is the worst i have seen it in the 23yrs i have been going.... but we still had fun, mum and dad came too, they go home tomrorow. Nixon was good, he slept well at night and got some pickies in the snow (the friday was sunny and nice outside so took the opportunity)
    Carrie- good to hear yoiur back and you had a good time, Hope Kayla is back into her comfy routing again.
    Jess- How is Pat going? I'm not sure if he has come home yet or not? we drove past the sign to "Eoroa"!! how far in from the main h'way is it where u live?

    last week at mothers group was speaking to one lady who alos has a reflux boy, she was taking him to a chiropractor last week. anyway whilst at the snow i was talking with my friend who is an osteopath, so he did some work on Nixon while we were there, silly me didnt think to see him before this but he is very similar to a chiro, so he is gonna come around once a week to Help nixon.... fingers crossed it works. i was going to say he has been going really well but todays spews have been out of control.

    Tiff-
    so sorry ot hear ivy is still batteling with the reflux as well as being sick, poor girl. i am glad though peopleare finally listening and taking note of whats going on.

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