PCOS - what is your story?

[belmarks]

Oh girls, thank you for your support, it means alot that I can come here and talk to women who know what I am feeling and what I am going through. Its hard to talk to your friends, because they haven't got the foggiest idea what it is REALLY like... so a huge thank you xxoo

Megs - I have tried everything. I used clomid first off when I was TTC years ago and it didn't work for me, then went to AIH and then IVF. I have used clomid about 3 months ago and it did nothing. So I obviously don't respond to it at all, which is frustrating in itself. I had been telling myself all the last month that this was the cycle that I was going to fall pg on, being very positive about it, but again, its just not happening. I am at CD 34 today, and I usually O on CD35 (well, thats been the pattern for the last few cycles, but who knows what this cycle will bring).

Going back to the herbalist today and the acupuncturist this evening so I'll be telling them how I am feeling and that my cycle just isn't consolidating at all.

Its really frustrating because seriously everything that I have tried that has worked wonders for other women with PCOS hasn't worked for me. I get on to something that has worked miracles with other women and then I get disappointed when it doesn't have the same effect on me. I need to pull my head in though and realise that everyone is different and it wont always be the same for my body.

Considering that I am really emotional at the moment, I guess it could be a sign that O is on its way? Who knows....

Hi Bathsheba, welcome to this little thread that we have here. Sorry for being a bit of a wet blanket. I promise I will be happier from now on. Tee he he! Wow I can't believe that you have only just found out about your PCOS. Its great that you have only got a couple of symptoms and that you were able to conceive easily. See, there IS hope for us! LOL! Thanks for the acclaim re the thread. I thought it might be a nice supportive place for PCOS women to come to, so its great to get that feedback.

Im glad I've inspired you to start with acupuncture. It has certainly worked for me. I definitely feel more grounded and generally "settled" in myself. Sleeping much better and finding that I wake absolutely rested, instead of more and more tired each day.

Hi Lynn, how are you? I haven't been monitored for cycles since we did IVF with Coby, I just don't want to go down that route again if I can possibly avoid it. If it comes to it though, perhaps monitoring for a cycle or two wouldn't hurt...Might look more into it shortly. How is the pg going?

Just a quick question, do any of you gain weight with PCOS? Not sure if anyone has already said this or not...Im not overweight, but have a few kilos I'd like to shift and just can't, I'd love to lose about 2-4kg and just can't...

Anyway thanks again girls for lifting me up. I feel much better today xxoo

what have you all been doing for the last few weekends? Anything exciting?

[Lynn]

Do any of you gain weight!!!!!?!??!?!?!? What a question! - YES!!! I was gradually putting on weight and hadn't changed anything so I thought it was bizare. Then when we started TTC and after a year it wasn't working and I started to get depressed. When we eventually saw a FS and he said that I had PCOS it all made sense. After I lost Cooper I lost a lot of weight but that was from not eating (not good I know but I didn't care at the time). When we decided to TTC again I was put on metformin and I was surprised at how much this helped. I know you are already on this - does it help for you? I was told that if you put on weight while on metformin then it doesn't work for your body. I stopped taking it when I fell pg but I presume (if and when) this bub comes I will go back on it. Are you on a low GI diet?

I find that when I am pg I don't put on any weight. I don't know if the hormones are controlling my insulin better than when I am not pg but with Coops I only put on 300grams the whole pg. This pg I have only put on 4kg. Has anyone else had this? I know I shouldn't complain but I think it is weird as most people do put on weight.

I hope the herbalist and acupuncture can help today And I hope that the big O is happening soon!!!

[belmarks]

Hi Lynn, Im like you, I don't put on weight during pg. I lost about 5kg when I first fell with Coby and ended up only putting on 1kg throughout the pg.

I think you are right in saying that the pg controls the hormones better than the PCOS does.

I am not on a low GI diet, but I eat really sensibly. I am not overweight by any means, but there are a couple of kgs I'd like to shift and just can't seem to.

The Metformin doesn't seem to do anything for me at all. Its supposed to regulate ovulation and help you maintain your weight, well it does neither for me.

I have never had a problem with my weight, its always been ok. I just wondered if anyone else was going through the weight issue or not. But now that I would like to shift those last few kgs, I just can't seem to, very frustrating!!

[megs11]

Hi,
How are you all? I haven't been around, my dad was diagnosed with cancer last week, been busy with tests and scans and doctors!! Most horrible week of my life but things are looking a little more positive this week.

Belinda how are you going with the ovulation? Any luck yet, my fingers are still crossed and I have been thinking of you.

Metformin gave me an upset stomach. Did you ladies experience that?

Yes I am stacking on the weight, but I was never tiny, now I feel gross!! But i quit smoking aswell, so I guess that doesn't help.

Any how just thought I would catch up and see how you all are.

Meagan

[belmarks]

Oh Meg, I guess asking if you are ok is pretty useless. Goodness, what a week you must have had. I know there is nothing anyone can say or do at this point to make you feel at ease, so hopefully you will feel that you can come in here and chat to any of us at any time and hopefully ease your burden a little.

My thoughts are with you at the moment sweetie xxoo

[megs11]

Hi,
Much better news, another colonoscopy and more biopsies by the surgeon, he doesn't think it is cancer. How lucky is my dad if it turns out to be true? He has a 10cm tumor in his bowel and they think it is pre cancerous, all depends on the next lot of biopsies so my fingers are crossed!!!!

Anyhow, how are you? Egg? I hope so sweetie!! Fingers crossed for you!!!!!

Meagan

[Lynn]

Oh Meagan I hope so much that it isn't cancerous - I have my fingers crossed. When do you get the results? My mum had bowel cancer 7 years ago and they removed part of her bowel and she is fine now. She has regular checkups so hopefully it has gone for good. It is so scary when something like this affects your family. My thoughts are with you and your family.

Metformin did give me an upset stomach - I think this is why it helps me lose weight! I think my body was just getting used to it and I had to stop taking it.

Hi to Belinda too - hope you are well.

Everything is going ok with me at the moment. I had a bit of a scare at the ob's yesterday. He couldn't find bubs heartbeat - I was so hysterical! It was weird because I could feel bubs moving which didn't make sense, I thought my mind was playing tricks on me again. Then he tried to find my heartbeat and I didn't have one! The batteries weren't working properly in the doppler!!!!! I am never ever having a doppler check again - it was frightening! I went to the hospital after for a scan and bubs was fine, moving around heaps.................I just don't need these scares!

[katie82]

Hi,

I know i am a little late into this thread but just thought i would stick my nose in! I was told i had pcos at the age of 15. Im now 25. I had my ovaries drilled, saw a big professor at sydney womens hospital, had bone density scans the works. They were worried obviously about my hormone levels as they though iwas going to go through the change of life at any moment. So i was put on most of the drugs possible to treat pcos. I had acne, hair growth and weight gain plus many many others. When i ovulated (or was suppose to the pain was that bad i was in bed for approx 2 days straight.

But anyway enough complainging about me. My cousin who suffers also from pcos had trouble concieving also. She tried everything possible for 5 years with no outcome. She was sick of her weight, even though she was never really big, and joined sure slim and BOOM she was pregnant within 3 months. Her ob believes that this form of diet is worked off your hormones therefore prepared her for pregnancy! So anything is possible!

Hang in there... I hope you have good news sometime in the near future

Katiexxx

[belmarks]

Hi Katie, welcome to our little thread. I hope you find support and reassurance here that you are not along in this PCOS journey. Sounds like you have all the classic symptoms. Hopefully we can all get to know each other and help each other out with questions etc. Again welcome xxoo

Meg, wow, that would be fantastic news if it isn't cancerous. What a relief that would be. I have everything crossed for your dad. when will he find out definitely?

No O for me last month, well at least I don't think so anyway. I got AF last Thursday, which was great because it means that my cycles are shortening. So anyway, I decided to go on clomid again this month and am up to day 5 of taking that. Hopefully O should happen around the right time which would be fab!!

Lynn how are you going matey? Bloody hell, what a scare that must have been for you. Stupid OB, wouldnt you think they would check stuff like that routinely. Imagine how many others he could have scared, but I can't believe murphys law - that it happened to you!! That is the LAST thing you needed. Other than that, how is the pg going? How are you feeling now hun?

[Lynn]

Hey Katie - welcome to our little group. It is so good to be able to *talk* with people that understand the frustrations of PCOS.

Meagan - how is your dad going?

Belinda - how frustrating going through a cycle and not even ovulating! I had a few of those before the fsh/iui worked. I hope the Clomid does the trick for you this month The pg is going well.........physically but mentally........well.........I'm doing ok. Bubs is moving so much and it just scares me that it is getting tangled in the cord. I know that lots of babies get tangled in the cord and they can get untangled but I just hate the bl00dy thing and it scares me that something will go wrong again...........I'm trying to be positive but it is sooooo hard.

Hey just a question - did anyone find that their body actually got worse each time they tried to fall pg. We feel pg with Cooper on Clomid but this pg it didn't work and my body didn't respond to it so we had to do FSH/IUI. Not that I am even thinking about the next one until this is out but I have started to wonder whether my body is getting worse and whether FSH/IUI will work again?

[MrsAznrabbit]

yeah late joiner here too i have had pcos since i was around 12 so i was put straight on the pill my symptoms included:

*periods every one or 2 weeks
*thick hair
*oily skin*
*bad acne
*a weird brown patch of skin
*being overwieght

Later i discovered i had endo too. Recently suffered an mc and now im scared ill never conceive again my DF thinks it will all work out but i dont hold the same hope really call me pessimistic but thats how it is

[belmarks]

Hi Sara, welcome to our little group. Hope you can get some support here and hopefully contribute some support too. Good luck with the TTC journey, its a long and hard one but Im sure you'll get there in the end and its well worth it!!

Hey Lynn, glad you are feeling a little better. I know what you mean re the cord thing, I would be petrified too. I guess being more tuned in to this little one's movements is a good and bad thing, you would be constantly checking and worrying. How often do you have OB appointments? More than usual because of what happened with Cooper or just the same as everyone else?

Hi Katie and Megs, how are you both? HOpe things are going well for you both.

Megs, how's your dad? Any news yet?

Nothing much happening for me, Im at CD 11 today, so BD fest for me... I've got everything crossed (except my legs tee he he) that the clomid worked this time and I will fall pg this cycle...

Lynn - to answer your question re the difficulty each time you want to fall pg, I haven't really got anything to guage it against, because we had to do IVF with the first pg. So I guess that's as "hard" as you can get.

I've tried clomid this time to try and see whether it will work for me or not, Im really hoping that it does...If not, who knows. I know DH doesn't want to go through IVF again, and quite frankly, neither do I...

[Lynn]

Hi Sara - welcome to our thread and I am so sorry for the loss of your precious bub. I had the same fear about never been able to conceive again. It took us 2 years to conceive Cooper on Clomid and I was so scared that it would take that long again or even worse that Coops would be our only child. When we started TTC Clomid didn't work and it made my fears even worse..........luckily fsh/iui worked for us. It is a very hard decision of deciding when to try again and only one that you and your DF can make. For us we started TTC straight away because of my age but because we didn't know how long it would take. Best wishes for whenever you start TTC

Belinda - I have ob appointments fortnightly. I have done this from day one. I also have a scan weekly just to check that everything is ok. From 30 weeks I will see my ob weekly and will have more monitoring and scans. Good luck on the bed fest - what are you doing on here, go and get busy girl!!!! I hope so much that this month works for you

Hi to everyone else, hope you are having a nice weekend!

[megs11]

Hi Girls.

We are hoping that all the biopsy results might be back tomorrow... Fingers crossed they are okay and we can start to plan the surgery to take the tumor out!!! What an emotional roller coaster!! There must be a positive side to it all in that it will bring us even closer!!

Hi MrsA and Katie, hope you enjoy this little thread and it is of help to you both. PCOS is a crappy disorder!! We are united in that opinion!!

MrsAznrabbit - I am sorry for your loss and you are right it is very hard to remain positive when you have had the loss of a baby, nothing ever feels that it will be right ever again, give yourself time and be kind to yourself, we are always here if you need us.

Belinda - how are you? I guess you must be busy!?!?!?!?! I will keep everything crossed for you!!!!!!! I am glad you decided to try something else to TTC - sometimes alternative therapy works in beautifully with traditional medicine.

Lynn - OMG!!! No wonder you were scared, you should have smacked your OB in the head with the doppler!!! Then used it to check for a brain!!!! I am sure everything will work out, you will have your little *Hope* in your arms before you know it, I think it is only natural to be scared, worried and frightened, you would have never expected what happened with Cooper, it is bound to bring up a lot of memories and feelings, not to mention is hasn't been that long, you can only deal with it and your feelings as it happens and love each other, little Cooper and your beautiful little one in your tummy. You are a beautiful Mummy and deserve only beautiful things. xxxxxxxxxxxxxxxx

[MrsAznrabbit]

Thanks, you know the weird thing is i never really worried about it until i got pregnant and MC. My DF has complete faith in me and thats why he wants to wait but thats hard as i have no faith in myself does this make any sense or am i just rambling? I just know it wont be easy as my mom and grandmother had PCOS and Endo but my grandmother had to try 4 years after getting married to have her first and another 4 for the second, my mom had her 1st at 22 and had 9mcs up until she had me at 30. So i think im kind of scaring myself here maybe i think ill be like that maybe my problem lies there.

[belmarks]

Hi girls. How are we all??

Sara - I know you are worried because of your family history, but please don't worry, they have made huge advances in this field (reproductive I mean) and Im sure it will be all ok for you. Isn't it funny that you don't think about having a baby until its taken away from you. Its a cruel joke I think... I notice on your "location" that you are United Kingdom/United States. Whats the go there? Do you live in both at different times? Or originally from one and living in the other? I also noticed that you are trying to wait another 2 years before trying again? What is the reason behind that decision? I hope that you feel like you can come in here at any time and rant and vent about this stupid syndrome (thanks for that saying Megs) and that we can help you through it, or at the very least, help you to see some positives in what you are going through and sometimes have a laugh or two. Just remember, you got pregnant once on your own, it WILL and CAN happen again. Just because your mum/grandmother had things one way, doesn't necessarily mean that you will have it that way too. Chin up honey xxoo

Lynn - that's great that you are on more ob appointments and more scans. Does that help put your mind at ease just a little?

Megs - wow, I hope the op all goes really smoothly for your dad. You are right, this will bring you all closer and remind you how important and special family really is. I wish you and your family all the very best matey xxoo Let us know what his results come back with today. I'll be thinking of you all day xxoo

Not much happening here. I can't remember if I've said that we have our house on the market or not? Anyway, we do and I think it might be sold. Waaaaaaa Im gonna miss my house if we go. We built this house in 99/2000 and we've got loads of memories here. But I know we are moving on to bigger and better things and we can make lots more memories in our new house. We are planning to build again - yeah I know, we're MAD!! I think we will know by the end of this week if its definitely going through.....eeeeekkk!!

[belmarks]

Hi Bathsheba and Cessie - where are you two lovely ladies??? Hope you are back in here soon so we can catch up on what you are up to xxoo

[megs11]

Hi All.

Sara - Yes what you are saying makes sense, I felt after I lost my bubbies like a complete failure, angry, heartbroken, yes I rambled, thought of all of the 'what ifs'. Even months after, although it had eased I still had and do have my sad moments, but I go with it, feel what I need to feel and then go on. I am really torn at the moment whether I want any more or not, my last pregnancy wasn't planned and I wasn't sure if there was going to be anymore children, so I am wary of wanting more at this stage. I said I would give myself six months to think about it and not make any emotional decisions, well it has been nearly twelve months and I am still torn, another part of me is really terrified to REALLY want another baby as I know it isn't going to be straight forward, where as I was blessed with my boys to fall pregnant easily I don't know if I am ready to face the fact that I may not be able to fall pregnant again - see raving!!! I think sometimes you think the worst and hope for the best, it is a way to protect yourself, if you are waiting two years then that is okay, you are very young - set yourself up in life a little more, enjoy this time with your DF and get your body as ready as possible for your next pregnancy, see all the experts, and make sure you give yourself time to heal from your recent loss.

Belinda - thanks for your nice thoughts, keep those fingers crossed!!! I have Jasper home sick today, poor little thing has been throwing up HEAPS, I haven't known either of my boys to throw up so much, every 20 minutes at one stage!! He is looking a little brighter today. I hope your house sells, I don't think you are mad building again, I LOVED building my house!!! I think you do or you don't if you hated it the first time you would never do it again!! How exciting, choosing bricks, tiles carpets etc etc. I am jealous!!! We built in 99 and it would be great to move to something bigger.

When do you test? How does clomid work exactly, it stimulates ovulation doesn't it? See, this is why I am terrified to want to try again, you guys are all experts in all of this TTC and I am terrified to become one, you are very brave ladies, I am a big sook!!!! If my cycles are about 5 months would something like that help? Ohhhh see, starting to ask questions!!

Better go,

Meagan