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Thread: Zoladex

  1. #1
    Rainbow Guest

    Default Zoladex

    My specialist intends to recommend a short course of Zoladex.
    What is it? Has anyone tried it? Has anyone heard any good / bad reports?
    Thanks.


  2. #2

    Default

    Hi, My doctor gave me a script for Zoladex although I never filled it. From what I understand it puts you in a menopause like state so you don't ovulate, therefore - no periods - endo should stop growing, possibly even shrink. I suggest you research the side effects before taking it, my doctor said it should not be taken for more than 6 months as it can lower your bone density, you may also have menopause like syptoms such as hot flushes, headaches mood swings etc. All I can suggest is ask your doctor more questions before deciding.
    Janine

  3. #3

    Default

    I was on zolodex for 6 mths after my first lapraoscopy. It was injected into my stomach. It does stop your period and I didn't have any side affects from it.

    Love

  4. #4

    Default

    They wanted to put me on that was told the side effects can leave you exhausted and bed ridden the whole time while other people have no effects at all. I said no thank you and never went ahead with the treatment. Ask your dr for pamphlets, informations, websites etc if you are concerned

  5. #5

    Join Date
    Aug 2006
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    Perth, WA
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    1,240

    Default

    Hey Rainbow

    I was on zoladex for 6 months about about 6 years ago. It was due to fibroids...

    As a 30 year old, the zoladex put me into a menopausal state where I had no periods, hot flushes, cognitive difficulties, extreme vaginal dryness, weight gain, mood swings (e.g. anxiety) etc. It was pretty awful...and I was getting married at the same time...my DH and I always joke about how many people get the "privilege" of a marrying a menopausal bride of 30!

    After the 6 months of zoladex treatment, my Gyn. decided he was no longer going to treat "public" patients (my private health insurance hadn't kicked in at that stage as the fibroids were seen as a pre-existing condition) so I had to go back into the public system (6 months waiting list). Once I finished the 6 months of zoladex, my periods returned, causing ++ difficulties, including severe anaemia and heavy periods that lasted for 2 weeks at a time, etc.

    When I eventually got seen in the public system by another doctor, the Gyn. I saw, was horrified that I had been on zoladex and basically said it was an outdated treatment for fibroids and that it should have never been undertaken...

    After a few months, my private health insurance kicked in, and I went to a private Gyn. He treated the fibroids through embolism, which meant no zoladex or extreme invasive surgery...it was basically the most up-to-date treatment for fibroids available, and it worked wonderfully! His opinion was also that the zoladex was unnecessary.

    So...my personal opinion about zoladex was that it was awful...and the second and third professional medical opinions I received, was that it was outdated and unnecessary. I was left with a 10+kg weight gain that I never successfully shifted (despite diet and exercise)...and a lot of annoyance/anger at my original Gyn. for putting me on a treatment that caused lots of problems...and then "abandoning" me before really dealing with the problem...

    Having said all that...my problem was fibroids...so different medical problems may respond better to zoladex that what mine did...all zoladex did for me was stop periods (which then stopped the severe anaemia) and put me into a menopausal state...once the zoladex was ceased, all the original symptoms returned, because the fibroids were never properly treated...

    My advice would be to do some research...perhaps get a second opinion before you start the zoladex...

    Wishing you all the best!

  6. #6

    Join Date
    Aug 2006
    Location
    N.S.W
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    361

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    As per my reply to your other post. I too was prescribed this drug. I personally didn't like the thought of such a drug in my system...that's when I searched for an alternative.

    I asked Dr. Cooper about this and other drugs that had been suggested to me and he bluntly said, "they don't work...we don't use them...full stop" In ECCA's opinion the best treatment for endo is excisional 'iceburg' surgery.

    Hope this helps,

    Cindy

  7. #7

    Default

    NO NO NO run as far away as you can from the Zoladex... as Joels Girl stated above the only way to tackle endo efficiently and effectively is through iceburg surgery.....

    Zoladex went out with Noah on the Arc...

    leis x
    Last edited by firemansgirl; March 23rd, 2007 at 08:58 AM.

  8. #8
    Rainbow Guest

    Default

    Thanks so much everyone!
    My appt is next week so I'll let you know what comes of it.

  9. #9

    Default

    What Dr are you seeing Rainbow? Love leis x

  10. #10
    Rainbow Guest

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    Hi Leis,
    Pls email me and I'll let you know.

  11. #11
    thia Guest

    Default

    Hi there,

    It really depends on your situation as I'm sure there are times when this treatment works, but for me it was just too much to face at the time. I thought it might help to talk about my story as it shows that there are other options.

    Like others I was also prescribed zolodex with a further operation scheduled for 6 months time. I was a bit freaked out by it as I had a few other health issues and was feeling very fragile, didn't like the idea of a medically induced menopause and hated the thought of more operations and my ob was already talking about ivf as a possible option - this really freaked me out as I hadn't realised there was a problem of that significance as my symptoms weren't that severe, but as it turns out that is the way endo can sometimes work.

    I was fortunate that I was in a long term relationship where we were planning at some point in the next couple of years to start a family. After thinking long and hard about the situation, my age, circumstances etc. we decided to try and concieve anyway and I negotiated a 6 month delay with my ob. At the same time, being desperate for a solution to my other health problems I followed a friend's advice and consulted a naturopath. She was amazing and discussed alternative options for treating endo which for me meant a lot of work 'balancing' my hormones (acupuncture, liquid herbs, lots of monitoring of cycles etc). I was pretty sceptical as it was my first genuine exposure to this type of approach but I was desperate and wanted to explore every option before I resorted to more surgery and drugs. I gave it a while, can't remember now but probably 5 or 6 months, until my cycle had become somewhat 'normal' - managed to stretch out my cycle from 20 days to 26 days! and we had a go at TTC. Second cycle it happened! Unfortunately it ended up in an early miscarriage. I had a break for a few more months (continuing the treatment), feeling a bit more comfortable that we were at least able to get pregnant, also we were in the midst of getting married and buying a house so I thought it was best to wait until a bit of the stress had died down. First try (6 months later), honeymoon, success, I'm now 36 weeks pregnant and everything has been great.

    Endo is one of those tricky things where they don't really know whether it will impact your fertility and to what extent - maybe we were always going to find it easy to concieve, but given my diagnosis and seeing the change in my cycle and my general well being through the natural treatment, I'm certain that it helped us.

    I'm not saying that zolodex isn't the way to go, but you might want to consider alternatives. I've heard that sometimes the surgery cycle can be hard to break as scar tissue can build up and if you don't concieve straight after the surgery then you may end up needing further ops (but maybe some of the more advanced surgical techniques are better and less invasive than those proposed by my ob)

    Anyway, best of luck, I'm sure whatever decision you make will be the best for you

  12. #12
    Rainbow Guest

    Default

    Hi Thia,

    Thanks so much for sharing your story. Congratulations on your pregnancy! My eyes filled with tears of joy on reading that. I hope you and your family are able to enjoy each other immensely.

    As it turns out, my doctor didn't end up mentioning Zoladex this time after all. But he scheduled an op in 5 months. My fertility isn't looking so great. Like you, I had mostly managable symptoms and didn't realise my endo would be so severe (stage 4/5).

    You are right, I should definitely seek alternate therapists to help balance my body as much as possible. It is the perfect time to explore that and I hadn't thought of it myself.

    Thank you!!

  13. #13
    thia Guest

    Default

    Hi Rainbow,

    That sounds great, 5 months sounds like a good amount of time to prepare yourself, learn as much as you can so you feel confident in the outcome and look at other options if you want to.

    Another thing worth mentioning is that even exploring other options may make you feel more in control and confident about the choice/s you make. I know I found dealing with some of the medical specialists, whilst caring and professional, they only had very limited time and it's hard to think of all your questions and have your fears/concerns adequately addressed in a 15 minute time slot. Even if they don't mean to make you feel rushed, it's hard not to feel like you are wasting thier time with irrational or emotional questions. The naturopath that I dealt with spent well over an hour with me on my first visit, just talking, and that alone meant the world to me. I walked out feeling like I wasn't completely alone and a little more in control emotionally, because it is a scary and emotional issue to confront. With the right people on your side you may find that it is easier to make decisions that work for you, and remember, it doesn't need to be a choice between either/or, if you decide that you want to go the surgical path, there are a lot of things that a good naturopath can do to help your body prepare for the surgery and assist in a quick recovery and a improve your chances of conception.

    Anyway, my heart goes out to you and I wish you every chance of a successful treatment.

  14. #14
    Nikstar Guest

    Default

    Hi Rainbow, if I can give you any advice its to steer very clear of Zoladex. I had about 3 doses in between 2 laps and the changes in that short time that it made to my body were horrendous! I lost copious amounts of hair, experienced menopausal symptoms like night sweats, hot flushes, etc and even now, a year later, things are not the way they were. I am now seeing a specialist due to a very dry vagina, be very careful with Zoladex, I would recommend seeking another opinion prior to using. Its awful! Good luck with your endo. Nikstar

  15. #15

    Join Date
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    Newcastle indefinitely
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    Just in case enough people haven't written to caution you re zoladex, I will be one more.

    I did get a successful pregnancy after zoladex with minimal menopausal side effects and relatively quick return of my cycles - thanks to my natropath.

    The top gynos in Sydney are not recommending zoladex anymore - there have apparently been some cases where women have not come out of the menopausal state ie menopause was induced. It is generally considered that excisive lap is the first line of treatment, particularly if you want to get pregnant.

    Best of luck,

    Mich

  16. #16
    Rainbow Guest

    Default

    I very much appreciate everyone's feedback!
    I've decided that if my doctor mentions it again, I will make it clear that I don't want it. He will have to give me some very good reasons if he is to change my mind.
    I'd rather focus on diet. It holds more promise and less side effects.
    Thank you!

  17. #17
    Benita Guest

    Default Zoladex

    Hi, Thanks everyone for your comments regarding zoladex. 2 years ago i was diagnosed with endo and have had 3 operations in 18 months. I have just been put on zoladex but am feeling very concerned about having this medication and the different side effects that it has on your body. I have been on it for 3 months now. On Sunday i got a normal period. Is this rare? I didn't think that you would get a period after being on this medication. Is it unwise to go off medication after just 3 months?
    Benita

  18. #18

    Join Date
    Mar 2007
    Location
    Newcastle indefinitely
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    Hi Benita,

    I didn't get any periods for the 6mths I was on zoladex. I then had about 3 periods after coming off zoladex in the following 6mths. I am not sure what is normal or what isn't though. Sounds like something to check with your doctor about as I thought the whole point to zoladex was that it stops your periods. Your probably thinking that too right?

    Good luck, let us know how it goes,

    Mich

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