I am having the same delimma as you. I have only had first trimester losses, but I have had a few. I am only low positive for cardiolipin antibodies which cause clotting so he just wanted me to take aspirin. I am freaking out too, really scared, as everything I have read says aspirin and heparin together work much better than aspirin alone for antiphospholipid syndrome (APS). I have spoken to two women on the pregnancy and APS forum who have both has 2nd trimester losses while on aspirin, and they were only low positive. I do know that levels can fluctuate and mine was almost in the mod level, so I am afraid in might jump there in the next preg and I feel like it needs to be monitored. I don't know if I could cope with a second trimester loss after everything we have been through already. I just don't believe it is a trial and error process, ie. if I have a 2nd tri loss, then we try heparin, I really think I have had enough m/cs and I don't want to do trial and error. I think sometimes the huge gravity of the potential of another loss is not takenly seriously enough by the medical profession. I have just changed obs and this one is a gem and we have scheduled a chat tomorrow by phone, so hopefully he will allay my fears. I feel like I am being paranoid, but I also want to know I have done everything possible to ensure the best possible outcome, and I am willing to risk the possible negatives of heparin if I can have a healthy baby. I do know that in terms of APS, most of the research recommend heparin and aspirin after 3 m/cs or 1 2nd tri loss. I don't know what the research says on Factor V. Wishing you strength in your investigations and hoping that you find a place (and I do too) that we feel comfortable in, that we are getting to best care.
Thankyou too for sharing what you have done for your little Katelyn. We also planted a tree, a native called a tiny tot for our moonbeam and I have collected other little things for our other ones. It is so important to honour our little ones, we all know here that they will never be forgotten, but it is also OK to move on. You gave Katelyn the journey that she needed/ choose in this lifetime and I am sure she would want you to have happiness in your lives and make space for another soul to come to you.
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